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Overall Survey Results:


Alzheimer Disease Early Detection Survey: For Researchers


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1What is your gender?
 
Answer
0%100%
Number of
Response(s)		Response
Ratio
Female
   
87 35.3%
Male
   
158 64.2%
No Response(s)
   
1<1%
 Totals246100%
2What is your age?
 
Answer
0%100%
Number of
Response(s)		Response
Ratio
20 or under
 
0 0.0%
21-35
   
60 24.3%
36-50
   
97 39.4%
51-65
   
71 28.8%
65-80
   
16 6.5%
81 or over
   
2 <1%
No Response(s)
 
00.0%
 Totals246100%
3What is your direct experience with AD? (Select all that apply)
 
Answer
0%100%
Number of
Response(s)		Response
Ratio
I am or have been a caregiver
   
25 10.1%
I have a family history of AD
   
33 13.4%
I have worked with people with AD professionally or as a volunteer
   
76 30.8%
I am involved in research on AD
   
219 89.0%
I have been diagnosed with AD
   
2 <1%
I have little or no direct experience with AD
   
7 2.8%
 Totals246100%

4If you have been a caregiver for someone with AD, please indicate the duration:
 
Answer
0%100%
Number of
Response(s)		Response
Ratio
Less than one year
   
10 4.0%
1-5 years
   
16 6.5%
5-10 years
   
11 4.4%
More than 10 years
   
7 2.8%
 Totals246100%

5How concerned are you about your risk of developing AD?
 
Answer
0%100%
Number of
Response(s)		Response
Ratio
Not very concerned
   
78 31.7%
Somewhat concerned
   
132 53.6%
Very concerned
   
29 11.7%
No Response(s)
   
72.8%
 Totals246100%

6Do you think there are adequate tools available to screen non-clinic-based populations for AD?
 
Answer
0%100%
Number of
Response(s)		Response
Ratio
Yes
   
41 16.6%
No
   
190 77.2%
Don't know
   
13 5.2%
No Response(s)
   
2<1%
 Totals246100%
7Do you think there are adequate tools available to screen clinic-based populations for AD?
 
Answer
0%100%
Number of
Response(s)		Response
Ratio
Yes
   
123 50.0%
No
   
110 44.7%
Don't know
   
13 5.2%
No Response(s)
 
00.0%
 Totals246100%
8Of the currently available tests, rate the following for accuracy for detecting early-stage AD:
 
 1 = 1-Most Accurate , 2 = 2 , 3 = 3 , 4 = 4 , 5 = 5-Least Accurate
Answer
12345
Number of
  Response(s)		Rating
Score*
Mini Mental State Exam (MMSE)
   
234 3.1
Neuropsychological tests (memory and executive function)
   
235 2.2
Subject and informant interview (CDR)
   
236 2.7
A blood test for Abeta-42
   
223 3.5
A spinal fluid test for Abeta-42 and tau
   
228 2.7
Brain magnetic resonance imaging (MRI)
   
233 2.7
Brain glucose metabolism imaging (FDG-PET)
   
230 2.6
Brain amyloid imaging (PiB-PET)
   
233 2.3
Testing for the ApoE gene
   
235 3.2
Other
   
42 3.3
*The Rating Score is the weighted average calculated by dividing the sum of all weighted ratings by the number of total responses.


9Would you personally want to be screened for possible early signs of AD?
 
Answer
0%100%
Number of
Response(s)		Response
Ratio
Yes
   
84 34.1%
Maybe, but only if treatments were available to slow the progression of the disease
   
98 39.8%
No, not with current tests
   
33 13.4%
No, never
   
8 3.2%
Unsure
   
21 8.5%
Other
   
4 1.6%
 Totals246100%

10Do you believe that some form of early screening for AD should be offered routinely? If so, beginning at what age?
 
Answer
0%100%
Number of
Response(s)		Response
Ratio
40
   
56 22.7%
50
   
68 27.6%
60
   
51 20.7%
70
   
22 8.9%
Never
   
21 8.5%
Other
   
21 8.5%
No Response(s)
   
72.8%
 Totals246100%

11Rate the importance of each of the following benefits of early screening of AD
 
 1 = 1-Most Important , 2 = 2 , 3 = 3 , 4 = 4 , 5 = 5-Least Important
Answer
12345
Number of
  Response(s)		Rating
Score*
May help patient access appropriate medical care earlier
   
241 1.7
May help patient better plan his or her future
   
242 1.8
May help patient deal with limitations at work or home
   
242 2.3
May help patient access appropriate disability benefits
   
240 2.4
May help patient access genetic counseling
   
241 3.1
Patient safety
   
240 2.5
Increases pool of volunteers for clinical trials
   
239 2.7
*The Rating Score is the weighted average calculated by dividing the sum of all weighted ratings by the number of total responses.


12Rate the importance of each of the barriers to more widespread early screening for AD
 
 1 = 1-Most Important , 2 = 2 , 3 = 3 , 4 = 4 , 5 = 5-Least Important
Answer
12345
Number of
  Response(s)		Rating
Score*
Public unaware of screening options
   
237 2.3
Public is afraid to know their AD risk
   
239 2.3
Physicians don't see benefit of early AD screening to patient
   
233 2.0
Physicians think screening is harmful to patient
   
234 3.1
Lack of accurate screening tools
   
239 1.8
Lack of training to administer screening
   
235 2.5
Inadequate reimbursement for screening and follow-up diagnostic work
   
238 2.4
Risk of health insurance discrimination
   
237 2.0
Other
   
28 3.2
*The Rating Score is the weighted average calculated by dividing the sum of all weighted ratings by the number of total responses.


13Given the current state of early detection and treatment of AD, what should a physician communicate to the patient/caregiver/family about early screening?
 
Answer
0%100%
Number of
Response(s)		Response
Ratio
Nothing
   
2 <1%
Nothing unless there is cause to worry, such as early symptoms or family history
   
81 32.9%
When patients ask to be screened, advise against
   
2 <1%
When patients ask to be screened, advise in favor
   
61 24.7%
Proactively inform patients about the options and let them decide for themselves
   
141 57.3%
Other
 
0 0.0%
 Totals246100%

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