PMP Pals' Network


Overall Survey Results:


PMP Pals' Exposures & Behaviors Survey


Text Block:
Thank you for answering today's survey regarding environmental exposures, personal behaviors, and/or family medical histories that may have affected our health.
This survey is not scientific and has been created specifically for our own interests as patients and family caregivers.
Patients, or their family caregivers/spouses may respond; one respondent per patient, please.
 

 
1How much time transpired between the onset of symptoms did you (or the patient you are answering for) seek medical care?
 
Answer
0%100%
Number of
Responses		Response
Ratio
Less than one month
   
104 31.7%
One to three months
   
73 22.2%
Three to six months
   
44 13.4%
Six months to one year
   
28 8.5%
One year or more
   
65 19.8%
No Responses
   
144.2%
 Totals328100%

2Required What is your diagnosis, or the diagnosis of the patient you are answering for?
 
Answer
0%100%
Number of
Responses		Response
Ratio
Appendix cancer
   
21 6.4%
Pseudomyxoma Peritonei originating with Appendix Cancer
   
163 49.6%
Peritoneal Carcinomatosis originating with Appendix Cancer
   
23 7.0%
Mucinous Adenocarcinoma originating with Appendix Cancer
   
92 28.0%
DPAM originating with Appendix cancer
   
32 9.7%
Pseudomyxoma Peritonei originating with Ovarian cancer
   
7 2.1%
Mesothelioma
   
2 <1%
Peritoneal Surface Malignancy not noted above
   
2 <1%
Signet Ring Cell
   
3 <1%
Other
   
28 8.5%
 Totals328100%

3Environmental; prior to becoming symptomatic, were you, or the patient you are answering for, exposed to any of the following?
 
Answer
0%100%
Number of
Responses		Response
Ratio
Asbestos
   
35 14.5%
Pesticides, personal (home) or professional use, proximity to agricultural use?
   
88 36.5%
Military service, Iraq/Afghanistan, Gulf War, Viet Nam, etc.
   
20 8.2%
Radiation for diagnostic purposes, x rays, CT scans, etc
   
84 34.8%
Radiation for profession, X ray Technician, Lab Technician, Chernobyl clean up
   
11 4.5%
Radiation environmental, residential proximity to power plant, nuclear waste
   
10 4.1%
Chemical, other occupational or environmental
   
35 14.5%
Oil refinery, proximity residential or employee
   
14 5.8%
H Pylori bacteria
   
16 6.6%
Other
   
38 15.7%
 Totals241100%

4Behavioral; prior to becoming symptomatic, did you, or the patient you are answering for, experience any of the following behaviors?
 
Answer
0%100%
Number of
Responses		Response
Ratio
Cigarette smoking
   
47 21.5%
Consumed more than 2 alcoholic beverages per day
   
46 21.1%
Consumed low fiber, high fat diet
   
63 28.8%
Wore tight jeans, girdles or clothing that restricted abdomen
   
41 18.8%
Vigorous abdominal exercises, "crunches", rowing, sit ups, coitus
   
58 26.6%
Other
   
17 7.7%
 Totals218100%

5Familial; have you, or the patient you are answering for, been diagnosed with any of the following? Have your siblings, parents or children been diagnosed with any of the following?
 
Answer
0%100%
Number of
Responses		Response
Ratio
Crohn's Disease
   
10 4.6%
IBS: Irritable Bowel Syndrome
   
51 23.8%
Celiac Disease
   
10 4.6%
Diverticulitis
   
53 24.7%
UC: Ulcerative Colitis
   
16 7.4%
Colon cancer/colorectal cancer
   
42 19.6%
Lynch Syndrome
 
0 0.0%
Scoliosis
   
17 7.9%
Gall Bladder Disease
   
59 27.5%
Other
   
29 13.5%
 Totals214100%

6How much time transpired between you seeking medical care for your symptoms and you receiving the correct, accurate diagnosis?
 
Answer
0%100%
Number of
Responses		Response
Ratio
Less than one month
   
129 39.3%
One to three months
   
77 23.4%
Three months to six months
   
39 11.8%
Six months to one year
   
26 7.9%
One year or longer
   
48 14.6%
No Responses
   
92.7%
 Totals328100%

7How old were you, or the patient you are answering for, when you first noticed your symptoms?
 
Answer
0%100%
Number of
Responses		Response
Ratio
Less than 20 years of age
 
0 0.0%
20 to 30 years of age
   
12 3.6%
30 to 40 years of age
   
49 14.9%
40 to 50 years of age
   
81 24.6%
50 to 60 years of age
   
120 36.5%
60 to 70 years of age
   
55 16.7%
70 to 80 years of age
   
8 2.4%
8 to 90 years of age
   
1 <1%
Other
   
1 <1%
No Responses
   
1<1%
 Totals328100%

8What is your gender, or the gender of the patient you are answering for?
 
Answer
0%100%
Number of
Responses		Response
Ratio
Male
   
132 40.2%
Female
   
194 59.1%
No Responses
   
2<1%
 Totals328100%
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