Survey Regarding Breast Cancer and Lymphedema Symptom Experience If you are a female 21 years of age or older and have been diagnosed with and treated surgically for breast cancer, you are invited to share your experience of breast cancer in this online study. The purpose of this study is to examine the reliability and validity of the Breast Cancer and Lymphedema Symptom Experience Index, an instrument to evaluate breast cancer survivors' symptom experience. Your valuable input will help to better understand women's experiences of breast cancer, including symptoms, distress, and quality of life. Ultimately, the information obtained from the study will help to gain insights into the needs of women who have survived breast cancer so that more personalized care can be provided. The study is brief and will take about 10-15 minutes of your time. You can skip any questions that you might feel uncomfortable in answering. Your participation is voluntary and anonymous. We will keep your responses confidential. Please note that the results from this online study may be used for publications and presentations. However, no identifying information will be used if the results are published or presented. IRB approval has been obtained from New York University. Your response to the study indicates your consent to participate in this survey. If you have any questions regarding your rights as a participant in the study or concerns about the study, please feel free to call the University Committee on Activities Involving Human Subjects (UCAIHS), at the New York University (which is a group of people who review the study to protect participants' rights) at 212.998.4808 or please email ask.humansubjects@nyu.edu Your input is valuable. Please take the time to complete this survey. We appreciate your response! Please only take this survey once per person. Copyright 2010, College of Nursing New York University
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