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NCRI CANCER CLINICAL TRIALS BIOSAMPLE RESOURCE DIRECTORY
Required Required Question(s)
1.

Summary Name of Collection (as you would like it to appear in the directory):
 

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2.

Name of Body/Organisation/Individual who controls the collection.
 

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Required 3.

Please enter your contact information below.

By entering my personal information, I consent to receive email communications from the survey author's organization based on the information collected.

First Name:
Last Name:
Work Phone:
Email Address:
emailaddress@xyz.com
Address 1:
Address 2:
Address 3:
City:
Postal Code:

4.

Full Trial Name.
 

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5.

Trial Acronym.
 

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6.

Brief Trial Summary.  (Please provide an abstract-style summary of the clinical trial.  Include information on any interventions, number of arms, randomisation, duration, etc.)
 

  • 1000 characters left.
7.

Please select the cancer/disease reflected in your collection.
Bone (if you select 'bone', please now complete question 8)
Brain (if you select 'brain', please now complete question 9)
Breast (if you select 'breast', please now complete question 10)
Digestive / Gastrointestinal (if you select 'digestive / gastrointestinal', please now complete question 11)
Endocrine (if you select 'endocrine', please now complete question 12)
Eye (if you select 'eye', please now complete question 13)
Genitourinary (if you select 'genitourinary', please now complete question 14)
Germ Cell (if you select 'germ cell', please now complete question 15)
Gynaecologic (if you select 'gynaecologic', please now complete question 16)
Head & Neck (if you select 'head & neck', please now complete question 17)
Haematologic/Blood (Lymphoma) (if you select 'haematologic/blood (Lymphoma)', please now complete question 18)
Haematologic/Blood (Leukemia) (if you select 'haematologic/blood (Leukemia)', please now complete question 19)
Lung / Respiratory / Thoracic (if you select 'lung / respiratory / thoracic', please now complete question 20)
Musculoskeletal (if you select 'musculoskeletal', please now complete question 21)
Skin (if you select 'skin', please now complete question 22)
Other  
8.

Bone:  If you selected 'bone' in Question 7, please tell us which of the following subtypes are included in your collection.
Ewing Family of Tumours
Osteosarcoma
Other  
9.

Brain:  If you selected 'brain' in Question 7, please tell us which of the following subtypes are included in your collection.
Adult Brain Tumour
Brain Stem Glioma
Cerebellar Astrocytoma
Cerebral Astrocytoma/Malignant Glioma
Ependymoma
Medulloblastoma
Supratentorial Primitive Neuroectodermal Tumours & Pineoblastoma
Visual Pathway & Hypothalmic Glioma
Childhood Brain Tumour (other)
Neuroblastoma
Pituitary Gland
Primary Central Nervous System Lymphoma
Other Brain Tumours
10.

Breast:  If you selected 'breast' in Question 7, please tell us which of the following subtypes are included in your collection.
Breast Cancer, not otherwise specified
Breast Cancer, special types (e.g. lobular, mucinous, etc)
Breast Cancer & Pregnancy
Male Breast Cancer
Other  
11.

Digestive/Gastrointestinal:  If you selected 'digestive/gastrointestinal' in Question 7, please tell us which of the following subtypes are included in your collection.
Anal Cancer
Appendix Cancer
Bile Duct Cancer, Extrahepatic
Carcinoid Tumour, Gastrointestinal
Colon Cancer
Small Intestine Cancer
Stomach (Gastric) Cancer
Oesophageal Cancer
Gallbladder Cancer
Liver Cancer, Adult Primary
Liver Cancer, Childhood
Pancreatic Cancer
Rectal Cancer
Other  
12.

Endocrine:  If you selected 'endocrine' in Question 7, please tell us which of the following subtypes are included in your collection.
Islet Cell Tumours (Endocrine Pancreas)
Parathyroid Cancer
Pheochromocytoma
Pituitary Tumour
Thyroid Cancer
Adrenocortical Carcinoma
Other  
13.

Eye:  If you selected 'eye' in Question 7, please tell us which of the following subtypes are included in your collection.
Melanoma, Intraocular
Retinoblastoma
Other
14.

Genitourinary:  If you selected 'genitourinary' in Question 7, please tell us which of the following subtypes are included in your collection.
Bladder Cancer
Kidney (Renal Cell) Cancer
Penile Cancer
Prostate Cancer
Renal Pelvis & Ureteric Cancer, Transitional Cell
Testicular Cancer
Urethral Cancer
Wilms Tumour & Other Childhood Kidney Tumours
Other  
15.

Germ Cell:  If you selected 'germ cell' in Question 7, please tell us which of the following subtypes are included in your collection.
Extracranial Germ Cell Tumour
Extragonadal Germ Cell Tumour
Ovarian Germ Cell Tumour
Testicular Germ Cell Tumour
Other  
16.

Gynaecologic:  If you selected 'gynaecologic' in Question 7, please tell us which of the following subtypes are included in your collection.
Cervical Cancer
Endometrial Cancer
Gestational Trophoblastic Tumour
Ovarian Epithelial Cancer
Ovarian Low Malignant Potential Tumour
Uterine Sarcoma
Vaginal Cancer
Vulval Cancer
Other  
17.

Head & Neck:  If you selected 'head & neck' in Question 7, please tell us which of the following subtypes are included in your collection.
Pharyngeal Cancer
Salivary Gland Cancer
Mouth Cancer
Nasopharyngeal Cancer
Hypopharyngeal Cancer
Laryngeal Cancer
Lip Cancer
Other  
18.

Haematologic/Blood (Lymphoma):  If you selected 'haematologic/blood (Lymphoma)'  in Question 7, please tell us which of the following subtypes are included in your collection.
AIDS-related Lymphoma
Cutaneous T-Cell Lymphoma
Hodgkin Lymphoma, Adult
Hodgkin Lymphoma, Childhood
Hodgkin Lymphoma during Pregnancy
Mycosis Fungoides
Non-Hodgkin Lymphoma, Adult
Non-Hodgkin Lymphoma, Childhood
Non-Hodgkin Lymphoma during Pregnancy
Primary Central Nervous System Lymphoma
Sézary Syndrome
T-Cell Lymphoma, Cutaneous
Waldenström Macroglublinemia
Multiple Myeloma/Plasma Cell Neoplasm
Other  
19.

Haematologic/Blood (Leukemia):  If you selected 'haematologic/blood (Leukemia)' in Question 7, please tell us which of the following subtypes are included in your collection.
Chronic Myeloproliferative Disorders
Myelodysplastic Syndromes
Myelodysplastic / Myeloproliferative Diseases
Acute Lymphoblastic Leukemia, Adult
Acute Lymphoblastic Leukemia, Childhood
Acute Myeloid Leukemia, Adult
Acute Myeloid Leukemia, Childhood
Chronic Lymphocytic Leukemia
Chronic Myelogenous Leukemia
Hairy Cell Leukemia
Other  
20.

Lung/Respiratory/Thoracic:  If you selected 'lung/respiratory/thoracic' in Question 7, please tell us which of the following subtypes are included in your collection.
Non-Small Cell Lung Cancer
Small Cell Lung Cancer
Malignant Mesothelioma
Thymoma & Thymic Carcinoma
Other  
21.

Musculoskeletal:  If you selected 'musculoskeletal' in Question 7, please tell us which of the following subtypes are included in your collection.
Ewing Family of Tumours
Osteosarcoma & Malignant Fibrous Histocytoma of Bone
Rhabdomyosarcoma
Soft Tissue Sarcoma
Other  
22.

Skin:  If you selected 'skin' in Question 7, please tell us which of the following subtypes are included in your collection.
Cutaneous T-Cell Lymphoma
Kaposi's Sarcoma
Melanoma
Merkel Cell Carcinoma
Other Skin Cancer
23.

What is the current status of the collection?
Accrual in Progress
Incomplete
Complete
Depleted through use
Other  
24.

Please provide information on where interested parties may see the access policy and material transfer terms and conditions for this collection.
 

  • 1000 characters left.
25.

What is the current accessibility for the collection?
Closed to Access
Access Restricted at Present
Open to Applicants
Open in Response to Specific Calls
Open Only Through Collaboration with Controlling Group
Other  
26.

Please note below which primary sample types you have in your collection and include the number of donors in the comment box below.
Frozen Disease-Affected Tissue
Frozen Unaffected Tissue
Paraffin Embedded Disease-Affected Tissue
Paraffin Embedded UnAffected Tissue
Blood
Urine
Sputum
DNA
Buccal Scrapes
Swabs for DNA
Circulating Tumour Cells
Other  
  • Comment:

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27.

Please note below which sample derivatives you have in your collection and include the number of donors in the comment box below.
DNA
RNA
Proteins
Cell Membrane Preps
Plasma
Buffy Coat
Dried Blood Spots
Tissue Microarrays
Unstained Sections
Other  
  • Comment:

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28.

Please tell us what sort of annotating information is available from your collection.
Pathology Report
Summary of Health Record/Medical Information
Treatment
Follow-up/Outcome
Cancer Registry Record
Other  
  • Comment:

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29.

Please provide information on any Biomarkers (e.g. name of Biomarker, measurement method, etc) measured in the samples in this collection.
 

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30.

Please provide the citation details of any papers/publications arising from the use of this collection.
 

  • 1000 characters left.
31.

Please name the sources of funding that have been used to develop or maintain the collection.
Cancer Research UK
Medical Research Council
National Institute for Health Research
Breast Cancer Campaign
Breakthrough Breast Cancer
Wellcome Trust
Leukemia & Lymphoma Research (formerly Leukemia Research Fund)
European Organisation for Research and Treament of Cancer
Industry
Other  
32.

Where is the collection currently stored?  (City/Town, County, Country).
 

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33.

Please provide additional information.  The information in the directory is more useful when it is most complete.  Please provide any additional information you feel may be helpful or of interest to those browsing or searching the directory.
 

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