2017 PRP Worldwide Census
Progress: 
 
Thank you for taking the time to participate in the 2017 PRP Worldwide Census. Before you begin, we want to underscore our privacy policy regarding your PRP-related information.

We are a global community. 
Each country has their own way of protecting a patient's medical information. For purposes of the PRP Census, we comply with U.S. HIPAA regulations.  

Confidential Data - The data we collect about your unique PRP journey - and the data for all PRP patients (active and in remission) - is encrypted, password-protected, and not connected to the Internet.

De-identified Data - When shared with PRP researchers like those at Thomas Jefferson University and Yale University School of Medicine or published in the PRP Survival Guide, your data is de-identified. Simply stated, the PRP Community Database reports numbers, not names. Because your data is disassociated with your name, you have complete and total anonymity.

So let's begin.