2019 PRP Global Census
Progress: 
 
My PRP journey began in August 2012 at the age of 66 with the appearance of a dime-sized red spot on my forehead. Within a few weeks I was misdiagnosed with
seborrheic dermatitis, It took another three months, four biopsies and a new dermatologist to be correctly diagnosed with adult onset PRP. 

My treatment plan began in December 2012 and included acitretin (25-50mg) and the daily slathering of Desonide (face and ears), Clobetasol (palms and soles), and triamcinolone (body). In April 2014, after a 20-month journey, I was declared in remission - symptom free and med free.

Starting with only one name - mine - it has taken over four years to build a database with nearly 1,764 PRP patients who are current members of the PRP Facebook Support Group (1,248) and/or the PRP Community on RareConnect (304), as well as those who are not aligned with either (574).

The information we seek in the 2019 PRP Global Census will be used to "whet the appetite of PRP researchers". We used the PRP Global Database to recruit 574 participants in a PRP Research project undertaken by UCLA, USC and Kaiser Permanente. Our database will continue to serve as a catalyst for future PRP research.

Regardless of the reason, if you are reluctant to participate in the 2019 PRP Global Census, please contact me at 214-205-0574 (Plano, TX) or via email at bill.mccue@prpAlliance.org.

Also, please indicate if you are a member of the PRP Community on RareConnect.

Thank you for participating in the 2019 PRP Global Census.

So let's begin.