Porphyria and COVID-19: Needs Assessment
Progress: 
 
The American Porphyria Foundation (APF) is assessing the burden that COVID-19 (Coronavirus) is having on our community members. This information will help us create programming that will be most meaningful and informative for you.

Your participation in this survey is voluntary. You may refuse to take part in or exit the survey at any time. Prior to the start of this survey, you will be asked to provide consent to allow the APF to share de-identified information with our community post-survey. The American Porphyria Foundation is strongly committed to protecting the privacy of our members. Names are requested solely to ensure accuracy in our data collection and will not be provided as part of our feedback.

COVID-19 updates related to Porphyria from the APF and Porphyrias Consortium can be found HERE
 
If you would prefer to contact the APF with your responses, please contact Edrin Williams via email: edrinw@porphyriafoundation.org or via phone at 301-312-8741 or 866-APF-3635.
 
Thank you for your critical participation!