Alzforum and Geoffrey Beene Foundation Logos


Overall Survey Results:


Alzheimer Disease Early Detection Survey: For the Public


1What is your gender?
 
Answer
0%100%
Number of
Responses
Response
Ratio
Female
   
101 63.1%
Male
   
57 35.6%
No Responses
   
21.2%
 Totals160100%
2What is your age?
 
Answer
0%100%
Number of
Responses
Response
Ratio
20 or under
   
2 1.2%
21-35
   
9 5.6%
36-50
   
35 21.8%
51-65
   
79 49.3%
65-80
   
28 17.5%
81 or over
   
6 3.7%
No Responses
   
1<1%
 Totals160100%
3What is your direct experience with AD? (Select all that apply)
 
Answer
0%100%
Number of
Responses
Response
Ratio
I am or have been a caregiver
   
89 55.9%
I have a family history of AD
   
79 49.6%
I have worked with people with AD professionally or as a volunteer
   
41 25.7%
I am involved in research on AD
   
13 8.1%
I have been diagnosed with AD
   
4 2.5%
I have little or no direct experience with AD
   
11 6.9%
 Totals159100%

4If you have you been a caregiver for someone with AD, please indicate the duration:
 
Answer
0%100%
Number of
Responses
Response
Ratio
Less than one year
   
10 10.0%
1-5 years
   
39 39.0%
5-10 years
   
32 32.0%
More than 10 years
   
18 18.0%
 Totals100100%

5How concerned are you about your risk of developing AD?
 
Answer
0%100%
Number of
Responses
Response
Ratio
Not very concerned
   
30 18.7%
Somewhat concerned
   
80 50.0%
Very concerned
   
46 28.7%
No Responses
   
42.5%
 Totals160100%

6Rate your level of knowledge about AD:
 
 1 = Uninformed , 2 = I know the basics , 3 = Well informed , 4 = Not sure
1234
Number of
  Responses
Rating
Score*
   
159 2.7
*The Rating Score is the weighted average calculated by dividing the sum of all weighted ratings by the number of total responses.
7Which of these statements about AD is true?
 
Answer
0%100%
Number of
Responses
Response
Ratio
Primary care physicians routinely screen for it in older people
   
8 5.0%
Primary care physicians routinely diagnose it with better than 70% accuracy
   
11 6.9%
A highly trained expert can diagnose it with better than 90% accuracy
   
64 40.5%
It cannot be diagnosed except by a brain autopsy
   
93 58.8%
Don't know
   
7 4.4%
 Totals158100%
8Complete the following statement:"Current treatments for Alzheimer disease are most effective at..." (Select all that apply)
 
Answer
0%100%
Number of
Responses
Response
Ratio
Stopping the progression of the disease
   
4 2.5%
Reversing damage already done by the disease
 
0 0.0%
Temporarily relieving some of the symptoms or slowing the decline
   
154 97.4%
Don't know
   
2 1.2%
 Totals158100%
9Of the currently available tests, rate the following for accuracy for detecting early-stage AD.
 
 1 = 1-Most Accurate , 2 = 2 , 3 = 3 , 4 = 4 , 5 = 5-Least Accurate , 6 = Don't Know
Answer
123456
Number of
  Responses
Rating
Score*
Memory test
   
158 2.9
Patient and caregiver interview
   
153 2.7
Blood test
   
151 4.9
Spinal fluid test
   
149 4.6
Magnetic resonance imaging (MRI) of the brain
   
153 3.1
PET scan of brain activity
   
153 2.9
Brain amyloid imaging
   
152 3.3
Testing for the ApoE gene
   
153 3.7
*The Rating Score is the weighted average calculated by dividing the sum of all weighted ratings by the number of total responses.
10Would you personally want to be screened for possible early signs of AD?
 
Answer
0%100%
Number of
Responses
Response
Ratio
Yes
   
68 43.5%
Maybe, but only if treatments were available to slow the progression of the disease
   
43 27.5%
No, not with current tests
   
24 15.3%
No, never
   
3 1.9%
Unsure
   
21 13.4%
Other
   
1 <1%
 Totals156100%

11Do you believe that some form of early screening for AD should be offered routinely? If so, beginning at what age?
 
Answer
0%100%
Number of
Responses
Response
Ratio
40
   
43 26.8%
50
   
56 35.0%
60
   
26 16.2%
70
   
11 6.8%
Never
   
3 1.8%
Don't know
   
15 9.3%
Other
   
4 2.5%
No Responses
   
21.2%
 Totals160100%
12How would you rate the potential benefits of early screening of AD using today's techniques?
 
 1 = 1-Most Important , 2 = 2 , 3 = 3 , 4 = 4 , 5 = 5 - Least Important
Answer
12345
Number of
  Responses
Rating
Score*
May help patient access appropriate medical care earlier
   
149 1.5
May help patient better plan his or her future
   
153 1.4
May help patient deal with limitations at work or home
   
152 1.9
May help patient access appropriate disability benefits
   
150 2.2
May help patient access genetic counseling
   
146 3.1
Patient safety
   
149 2.3
Increases pool of volunteers for clinical trials
   
149 2.5
Other
   
22 3.5
*The Rating Score is the weighted average calculated by dividing the sum of all weighted ratings by the number of total responses.


13How would you rate the importance of the following factors in discouraging you from being screened for cognitive impairment?
 
 1 = 1-Most Important , 2 = 2 , 3 = 3 , 4 = 4 , 5 = 5-Least Important
Answer
12345
Number of
  Responses
Rating
Score*
Lack of information about it
   
143 3.0
Fear of learning my risk of AD
   
143 3.2
Being counseled not to by my physician
   
137 3.8
Doubts about the accuracy of the tests
   
144 2.6
Lack of effective treatment
   
148 2.3
Fear of losing health insurance
   
144 2.3
Fear of discrimination at work
   
141 2.7
Fear of losing long-term care insurance
   
142 2.3
*The Rating Score is the weighted average calculated by dividing the sum of all weighted ratings by the number of total responses.
14Given what you know about the current state of early detection and treatment of AD, what should a physician communicate to the patient/caregiver/family about cognitive screening?
 
Answer
0%100%
Number of
Responses
Response
Ratio
Nothing
   
1 <1%
Nothing unless there is cause to worry, such as early symptoms or family history
   
29 18.4%
When patients ask to be screened, advise against
 
0 0.0%
When patients ask to be screened, advise in favor
   
49 31.2%
Proactively inform patients about the options and let them decide for themselves
   
119 75.7%
 Totals157100%